UN ESTUDIO OBSERVACIONAL, NO INTERVENCIONISTA, MULTICÉNTRICO Y MULTINACIONAL DE PACIENTES CON SÍNDROME HEMOLÍTICO URÉMICO ATÍPICO (REGISTRO DE SHUA).

Datos básicos

Protocolo:
ALE-ECU-2012-01
EUDRACT:
NCT:
Centro:
Año de incio:
2013
Año de finalización:
ESTUDIO OBSERVACIONAL

Documentos

  • No hay documentos

Participantes

Financiadores - Promotores

ALEXION PHARMACEUTICALS, INC.

Resultados del Ensayo Clínico


Adverse effects of the renal accumulation of haem proteins. Novel therapeutic approaches

Guerrero-Hue, M; (...); Moreno, JA

Review. 10.1016/j.nefro.2017.05.009. 2018

  • Open Access.

An update for atypical haemolytic uraemic syndrome: Diagnosis and treatment. A consensus document

Campistol, JM; (...); de Cordoba, SR

Review. 10.1016/j.nefro.2015.07.005. 2015

  • Open Access.

Bronchiolitis obliterans in a transplant-waitlisted patient with hepatorenal polycystic disease

Beltran, LI; (...); Oteiza, SM

Letter. 10.1016/j.arbres.2018.05.006. 2019


Calyceal diverticula in children: imaging findings and presentations.

Santiago, YO; (...); Lopez, PO

Article. 10.1016/j.rx.2018.02.010. 2018


Clinical characteristics and outcomes of elderly included in the Spanish Drug-Induced Liver Injury (DILI) Registry

Slim, M; (...); Andrade, RJ

Meeting Abstract. 10.1016/S0168-8278(17)31154-6. 2017


Contribution of the TTC21B gene to glomerular and cystic kidney diseases

Bullich, G; (...); Ars, E

Article. 10.1093/ndt/gfv453. 2017

  • Open Access.

Cost-effective PKHD1 genetic testing for autosomal recessive polycystic kidney disease

Krall, P; (...); Ars, E

Article. 10.1007/s00467-013-2657-7. 2014


DESCRIPTIVE STUDY OF THE RECORD OF THROMBOTIC MICROANGIOPATHY IN A SINGLE CENTRE

Romero Dominguez, S.; (...); Sanz Alonso, M. A.

Meeting Abstract. 2015

  • Open Access.

Discontinuation treatment with eculizumab in patients with hemolytic uremic syndrome

Mendizabal, S; (...); Martin, J

Meeting Abstract. 2019


Eculizumab in secondary atypical haemolytic uraemic syndrome

Cavero, T; (...); Praga, M

Article. 10.1093/ndt/gfw453. 2017

  • Open Access.

Eculizumab long-term therapy for pediatric renal transplant in aHUS with CFH/CFHR1 hybrid gene

Roman-Ortiz, E; (...); de Cordoba, SR

Article. 10.1007/s00467-013-2591-8. 2014


Effectiveness of mycophenolate mofetil in C3 glomerulonephritis

Rabasco, C; (...); Spanish Grp Study Glomerular Dis

Article. 10.1038/ki.2015.227. 2015


Elevated factor H-related protein 1 and factor H pathogenic variants decrease complement regulation in IgA nephropathy

Tortajada, A; (...); Rodriguez de Córdoba S

Article. 10.1016/j.kint.2017.03.041. 2017

  • Open Access.

FACIT-FATIGUE SCORES IN ADULT PATIENTS AT ENROLLMENT INTO THE GLOBAL AHUS REGISTRY

Sartz, L; (...); Licht, C

Meeting Abstract. 2018


HAEMOGLOBIN INDUCES PODOCYTE INJURY IN MICE AND HUMAN WITH PATHOLOGIES ASSOCIATED WITH MASSIVE INTRAVASCULAR HEMOLYSIS

Hue, MG; (...); Moreno, JA

Meeting Abstract. 2017


Health-related quality of life of X-linked hypophosphatemia in Spain.

Yanes, M I Luis; (...); Ariceta, G.

Article. 10.1186/s13023-022-02452-0. 2022

  • Open Access.

Herbal and Dietary Supplement-Induced Liver Injuries in the Spanish DILI Registry

Medina-Caliz, I; (...); Spanish DILI Registry

Article. 10.1016/j.cgh.2017.12.051. 2018


Human plasma C3 is essential for the development of memory B, but not T, lymphocytes

Jimenez-Reinoso, A; (...); Regueiro, JR

Letter. 10.1016/j.jaci.2017.09.037. 2018

  • Open Access.

Long-term safety in living kidney donors for paediatric transplantation. Single-centre prospective study

Benlloch, JM, Ortiz, ER, Oteiza, SM

Article. 10.1016/j.nefro.2016.03.013. 2016

  • Open Access.

MORBIDITY AND CLINICAL LABORATORY FINDINGS IN ADULTS WITH X-LINKED HYPOPHOSPHATEMIA (XLH)

Broseta, JJ; (...); Hernandez-Jaras, J

Meeting Abstract. 2019


Mosaicism in 2 cases of X-linked hypophosphatemia.

Broseta JJ; (...); Hernández-Jaras J

Letter. 10.1016/j.endinu.2019.05.009. 2020


Mutations in PMM2 gene in four unrelated Spanish families with polycystic kidney disease and hyperinsulinemic hypoglycemia.

Moreno Macián F; (...); Albiach Mesado V

Article. 10.1515/jpem-2020-0168. 2020


Podocytes are new cellular targets of haemoglobin-mediated renal damage

Rubio-Navarro, A; (...); Moreno, JA

Article. 10.1002/path.5011. 2018

  • Open Access.

Practical guide to emergency treatment of thrombotic microangiopathy

Romero S; (...); Grupo de Microangiopatía Trombótica del Hospital Universitario y Politécnico La

Editorial Material. 10.1016/j.medcli.2018.01.013. 2018


Prospective longitudinal study: use of faecal gluten immunogenic peptides to monitor children diagnosed with coeliac disease during transition to a gluten-free diet

Comino, I; (...); Sousa, C

Article. 10.1111/apt.15277. 2019

  • Open Access.

Recurrent Metabolic Alkalosis in a Cystic Fibrosis Patient: Coexistence with Congenital Chloride Diarrhea

Masip, E; (...); Ribes-Koninckx, C

Article. 10.1055/s-0039-1695059. 2020

  • Open Access.

Shrimp allergy in a pediatric population: Tropomyosin and beyond

Barona, CT; (...); Nieto, A

Meeting Abstract. 2019


Targeted next-generation sequencing in steroid-resistant nephrotic syndrome: mutations in multiple glomerular genes may influence disease severity

Bullich, G; (...); Ars, E

Article. 10.1038/ejhg.2014.252. 2015


Therapeutic apheresis in a pediatric nephrology unit: indications, results and complications associated with the technique

Martin, J; (...); Mendizabal, S

Meeting Abstract. 2019


Training in pediatric hepatology across Europe: a survey of the National Societies Network (2016-2019) of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition.

Papadopoulou A; (...); Kelly D

Article. 10.20524/aog.2022.0698. 2022

  • Open Access.

Campos de Estudio

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