Measuring Outcomes in Adults with Spinal Muscular Atrophy - Challenges and Future Directions - Meeting Report.

Filiaciones

Sansone VA:

The NEMO Clinical Center, Milan - Neurorehabilitation Unit, University of Milan, Italy

Walter MC:

Department of Neurology, Friedrich-Baur-Institute, Ludwig-Maximilians-University of Munich, Munich, Germany

Attarian S:

Reference Center for Neuromuscular Disorders and ALS, CHU La Timone, Aix-Marseille University, Marseille, France

Delstanche S:

Department of Neurology, University of Liege, Belgium

Mercuri E:

Department of Pediatrics, Catholic University of Rome, Roma, Italy

Department of Woman and Child Health and Public Health, Paediatric Neurology and Neuromuscular Omnicentre Clinical Center, Fondazione Policlinico Universitario A Gemelli IRCCS, Roma, Italy

Lochmüller H:

Department of Neuropediatrics and Muscle Disorders, Medical Center - University of Freiburg, Faculty of Medicine, Freiburg, Germany

Children's Hospital of Eastern Ontario Research Institute, Ottawa, Canada

Department of Medicine, The Ottawa Hospital, and Brain and Mind Research Institute, University of Ottawa, Ottawa, Canada

Neuwirth C:

Muskelzentrum ALS Clinic, Kantonsspital St. Gallen, St. Gallen, Switzerland

Vazquez-Costa JF:

Instituto de Investigación. Instituto de Investigacion Sanitaria la Fe (IIS La Fe), Neuromuscular Research Unit, Valencia, Spain

Department of Neurology, ALS Unit, Hospital Universitario y Politecnico La Fe, Valencia, Spain

Centro de Investigacion Biomedica en Red de EnfermedadesRaras (CIBERER), Valencia, Spain

Department of Medicine, University of Valencia, Valencia, Spain

Kleinschnitz C:

Department of Neurology, University of Essen, Essen, Germany

Hagenacker T:

Department of Neurology, University of Essen, Essen, Germany