Portal de investigación
Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis
Autores de IIS La Fe
Participantes ajenos a IIS La Fe
- Elborn JS
- Bell SC
- Madge SL
- Burgel PR
- Castellani C
- Conway S
- De Rijcke K
- Dembski B
- Drevinek P
- Heijerman HG
- Innes JA
- Lindblad A
- Marshall B
- Olesen HV
- Reimann AL
- Viviani L
- Wagner TO
- Welte T
- Blasi F
Grupos
Abstract
The improved survival in people with cystic fibrosis has led to an increasing number of patients reaching adulthood. This trend is likely to be maintained over the next decades, suggesting a need to increase the number of centres with expertise in the management of adult patients with cystic fibrosis. These centres should be capable of delivering multidisciplinary care addressing the complexity of the disease, in addition to addressing the psychological burden on patients and their families. Further issues that require attention are organ transplantation and end of life management. Lung disease in adults with cystic fibrosis drives most of the clinical care requirements, and major life-threatening complications, such as respiratory infection, respiratory failure, pneumothorax and haemoptysis, and the management of lung transplantation require expertise from trained respiratory physicians. The taskforce therefore strongly reccommends that medical leadership in multidisciplinary adult teams should be attributed to a respiratory physician adequately trained in cystic fibrosis management. The task force suggests the implementation of a core curriculum for trainees in adult respiratory medicine and the selection and accreditation of training centres that deliver postgraduate training to the standards of the HERMES programme.
Datos de la publicación
- ISSN/ISSNe:
- 0903-1936, 1399-3003
- Tipo:
- Article
- Páginas:
- 420-428
- PubMed:
- 26453627
- Factor de Impacto:
- 3,509 SCImago ℠
- Cuartil:
- Q1 SCImago ℠
EUROPEAN RESPIRATORY JOURNAL EUROPEAN RESPIRATORY SOC JOURNALS LTD
Citas Recibidas en Web of Science: 91
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- No hay documentos
Filiaciones
Campos de Estudio
Cita
Elborn JS,Bell SC,Madge SL,Burgel PR,Castellani C,Conway S,De Rijcke K,Dembski B,Drevinek P,Heijerman HG,Innes JA,Lindblad A,Marshall B,Olesen HV,Reimann AL,SOLE A,Viviani L,Wagner TO,Welte T,Blasi F. Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis. Eur. Resp. J. 2016. 47. (2):p. 420-428. IF:10,569. (1).