Position paper: Models of post-transplant care for individuals with cystic fibrosis.

Fecha de publicación: Fecha Ahead of Print:

Autores de IIS La Fe

Participantes ajenos a IIS La Fe

  • McKone, Edward
  • Ramos, Kathleen J.
  • Chaparro, Cecilia
  • Blatter, Joshua
  • Hachem, Ramsey
  • Anstead, Michael
  • Vlahos, Fanny
  • Thaxton, Abby
  • Hempstead, Sarah
  • Daniels, Thomas
  • Murray, Michelle
  • Vos, Robin
  • Tallarico, Erin
  • Faro, Albert
  • Pilewski, Joseph M.

Grupos

Abstract

There is no consensus on the best model of care for individuals with CF to manage the non-pulmonary complications that persist after lung transplant. The CF Foundation virtually convened a group of international experts in CF and lung-transplant care. The committee reviewed literature and shared the post-lung transplant model of care practiced by their programs. The committee then developed a survey that was distributed internationally to both the clinical and individual with CF/family audiences to determine the strengths, weaknesses, and preferences for various models of transplant care. Discussion generated two models to accomplish optimal CF care after transplant. The first model incorporates the CF team into care and proposes delineation of responsibilities for the CF and transplant teams. This model is reliant on outstanding communication between the teams, while leveraging the expertise of the CF team for management of the non-pulmonary manifestations of CF. The transplant team manages all aspects of the transplant, including pulmonary concerns and management of immunosuppression. The second model consolidates care in one center and may be more practical for transplant programs that have expertise managing CF and have access to CF multidisciplinary care team members (e.g., located in the same institution). The best model for each program is influenced by several factors and model selection needs to be decided between the transplant and the CF center and may vary from center to center. In either model, CF lung transplant recipients require a clear delineation of the roles and responsibilities of their providers and mechanisms for effective communication.

Copyright © 2023 The Author(s). Published by Elsevier B.V. All rights reserved.

Datos de la publicación

ISSN/ISSNe:
1569-1993, 1873-5010

Journal of Cystic Fibrosis  ELSEVIER

Tipo:
Article
Páginas:
374-380
PubMed:
36882349
Enlace a otro recurso:
www.scopus.com
Factor de Impacto:
1,818 SCImago ℠
Cuartil:
Q1 SCImago ℠

Citas Recibidas en Web of Science: 11

Citas Recibidas en Scopus: 13

Documentos

  • No hay documentos

Métricas

Filiaciones mostrar / ocultar

Keywords

  • elexacaftor plus ivacaftor plus tezacaftor; Article; consensus; cystic fibrosis; follow up; graft recipient; human; immunosuppressive treatment; interpersonal communication; lung transplantation; medical education; mental health; multidisciplinary team; perioperative period; practice guideline; complication; questionnaire; Consensus; Cystic Fibrosis; Humans; Lung Transplantation; Surveys and Questionnaires; Transplant Recipients

Campos de Estudio

Compartir