Mejoras clínicas después del cambio guiado por farmacocinética de factores de coagulación de media vida estándar a factores de media vida extendida.

Dades bàsiques

Protocol:
EURDRACT:
NCT:
Centre:
HOSPITAL UNIVERSITARI I POLITÈCNIC LA FE
Any inici:
2022
Any de finalització:
2024
ESTUDIO OBSERVACIONAL

Documents

  • No hi ha documents

Participants

Grups d'Investigació

Resultats de l'Assaig Clínic


[Translated article] Pharmacokinetic-guided switching from standard half-life factor VIII to extended half-life pegylated factor VIII in haemophilia A therapy in clinical practice.

Chovi-Trull, Maria; (...); Andres, Jose Luis Poveda

Article. 10.1016/j.farma.2024.12.007. 2025


A post hoc comparative real-world analysis of HEAD-US score for joint health assessment of patients with severe haemophilia A and B in Spain

Alvarez-Roman, Maria Teresa; (...); Kim, Hae Kyung

Article. 10.1111/hae.14924. 2024


Benefits of physical activity self-monitoring in patients with haemophilia: a prospective study with one-year follow-up.

Pérez-Alenda S; (...); Núñez-Cortés R

Article. 10.1111/hae.14988. 2024

  • Open Access.

Bladder cancer patients have increased NETosis and impaired DNaseI-mediated NET degradation that can be therapeutically restored in vitro.

Herranz R; (...); Medina P

Article. 10.3389/fimmu.2023.1171065. 2023

  • Open Access.

Comparative analysis of Hemophilia Early Arthropathy Detection with Ultrasound (HEAD-US) scores in persons with nonsevere hemophilia A and B reveals a high degree of joint damage in both disease types

Jimenez-Yuste, Victor; (...); Kim, Hae Kyung

Letter. 10.1016/j.rpth.2023.102207. 2023

  • Open Access.

Comprehensive Screening of Genetic Variants in the Coding Region of F8 in Severe Hemophilia A Reveals a Relationship with Disease Severity in a Colombian Cohort.

Sarmiento Doncel, Samuel; (...); Lopez Guerrero, Jose A

Article. 10.3390/life14081041. 2024

  • Open Access.

Delving into the clinical impact of NETs in pediatric cancer.

Benavent N; (...); Medina P

Article. 10.1038/s41390-024-03437-4. 2024


Determinants of bleeding before and during immune tolerance in 222 boys with severe hemophilia A and inhibitors >5 BU.

Fischer K; (...); Königs C

Article. 10.1182/bloodadvances.2023011442. 2024

  • Open Access.

Development and testing of a mobile app for systematic collection of patient-reported outcomes (PROs) in patients with hemophilia.

Megias-Vericat, J E; (...); Poveda Andres, J L

Letter. 10.1016/j.thromres.2024.109122. 2024


DIAGNOSIS OF JOINT BLEEDS: PREDICTIVE MODELING BASED ON PATIENT-REPORTED SYMPTOMS

Goldmann, G.; (...); Tiede, A.

Meeting Abstract. 2023


Effectiveness of progressive moderate-vigorous intensity elastic resistance training on quality of life and perceived functional abilities in people with haemophilia: secondary analysis of a randomized controlled trial.

Cruz-Montecinos C; (...); Calatayud J

Article. 10.1111/ejh.13900. 2022

  • Open Access.

EFFECTS OF MULTIMODAL EXERCISES PROGRAM ON BALANCE, FUNCTIONALITY, RISK OF FALLS AND STRENGTH IN PEOPLE WITH HAEMOPHILIA

Chimeno-Hernandez, A.; (...); Querol, F.

Article. 2022


EFFICACY AND SAFETY OF EPTACOG BETA (RECOMBINANT HUMAN FVIIA) ACCORDING TO AGE IN PERSONS WITH HAEMOPHILIA A/B WITH INHIBITORS UNDERGOING SURGICAL PROCEDURES

Miesbach, W.; (...); Mahlangu, J.

Meeting Abstract. 2023


Emicizumab-induced photosensitivity.

Asensi Canto, Pedro; (...); Haya Guaita, Saturnino

Article. 10.1055/s-0042-1749092. 2022


EPTACOG BETA EFFICACY AT 24 HOURS POSTINFUSION FOR MILD OR MODERATE BLEEDS IN INDIVIDUALS WITH HEMOPHILIA A OR B AND INHIBITORS

Boggio, Lisa; (...); Escobar, Miguel

Meeting Abstract. 2023


Geriatric assessment in hematology scale predicts treatment tolerability in older patients diagnosed with hematological malignancies: The RETROGAH study.

de la Rubia J; (...); Bonanad, Santiago

Article. 10.1016/j.jgo.2022.10.016. 2022

  • Open Access.

Haemophilic arthropathy: basic protocols for clinical examination and imaging.

Querol, F.; (...); Perez-Alenda, S.

Article. 10.1097/MBC.0000000000001215. 2023


Haemotrack: Musculoskeletal management in haemophilia with physiotherapist-driven digital solutions

Perez-Alenda, Sofia; (...); Aguilar-Rodriguez, Marta

Meeting Abstract. 2024


HOW ARE SPANISH HEMOPHILIA NURSES UP TO DATED?

Garcia-Barcenilla, S.; (...); Bosch-Ferrando, P.

Meeting Abstract. 2023


Humanistic burden of haemophilia A without inhibitors: A cross-sectional analysis of the HemoLIFE study.

Alvarez-Roman, Maria Teresa; (...); Soto-Ortega, Inmaculada

Article. 10.1111/hae.15057. 2024

  • Open Access.

IMPACT OF INITIATION OF PROPHYLAXIS, SYNOVITIS AND FUNCTIONALITY ON JOINT HEALTH IN PATIENTS WITH HEMOPHILIA

Chimeno, A.; (...); Bonanad Boix, S.

Meeting Abstract. 2023


Management of Urgent Bleeding in Patients with Hemophilia A: Focus on the Use of Emicizumab.

Jiménez-Yuste V; (...); Rodríguez-López M

Article. 10.1055/s-0044-1785525. 2024

  • Open Access.

Mental, emotional and social dimensions of quality of life and their relationship with physical and functional status in adults with haemophilia.

Rodríguez MA; (...); Chimeno-Hernández A

Article. 10.1016/j.thromres.2024.109181. 2024

  • Open Access.

Moderate haemophilia A: Recommendations from a Spanish panel of experts.

Álvarez Román MT; (...); López-Jaime FJ

Article. 10.1111/hae.15110. 2024

  • Open Access.

National Survey on the Use of Mobile Applications in Patients with Hemophilia and Other Coagulopathies

Eduardo Megias, Juan; (...); Poveda Andres, Jose Luis

Meeting Abstract. 10.1182/blood-2022-169938. 2022

  • Open Access.

Neutrophil extracellular traps (NETs) in patients with STEMI. Association with percutaneous coronary intervention and antithrombotic treatments.

Ferre-Vallverdu, Mari; (...); Moscardo, Antonio

Article. 10.1016/j.thromres.2022.03.002. 2022


Patients with Paroxysmal Nocturnal Hemoglobinuria (PNH) Treated with Pegcetacoplan: Real Life Experience

Vallejo, Carlos; (...); Vara, Miriam

Meeting Abstract. 10.1182/blood-2023-185570. 2023


Pharmacokinetic and clinical improvements after PK-guided switch from standard half-life to extended half-life factor VIII products.

Megias-Vericat, J. E.; (...); Poveda Andres, J. L.

Article. 10.1016/j.thromres.2022.06.001. 2022


Real-world analysis of the PK-guided switch from standard half-life factor VIII to efmoroctocog alfa.

Megias-Vericata, J. E.; (...); Poveda Andres, J L

Letter. 10.1016/j.thromres.2023.11.023. 2023


Real-world data in patients with congenital hemophilia and inhibitors: final data from the FEIBA Global Outcome (FEIBA GO) study.

Ettingshausen CE; (...); Windyga J

Article. 10.1177/20406207231184323. 2023

  • Open Access.

Suitability and readiness assessment of organizational resources for the implementation of gene therapy in hemophilia in Spain and Portugal: A survey-based study.

Villas JMC; (...); Álvarez-Román MT

Letter. 10.1016/j.thromres.2024.109180. 2024


The Limitations and Unmet Needs of the Five Cornerstones to Guarantee Lifelong Optimization of Prophylaxis in Hemophilia Patients.

Nunez, Ramiro; (...); Jimenez-Yuste, Victor

Article. 10.1055/s-0042-1757745. 2022

  • Open Access.

Thromboembolic hazard in hereditary hemorrhagic telangiectasia.

Asensi Canto, Pedro; (...); Bonanad Boix, Santiago

Article. 10.1002/jha2.471. 2022


Thrombotic risk and features of patients with inferior vena cava agenesis: a multicentre, retrospective, observational study.

Bravo-Perez, Carlos; (...); Corral, Javier

Article. 10.1016/S2352-3026(24)00138-8. 2024


Compartir el projecte