Survey on paediatric tumour boards in Europe: current situation and results from the ExPo-r-Net project

Data de publicació: 01/08/2018

Autors de IIS La Fe

Antonio Juan Ribelles

Autor
Pablo Berlanga Charriel

Autor
Victoria Castel Sánchez

Autor
Adela Cañete Nieto

Autor

Autors aliens a IIS La Fe

Schreier, G
Nitzlnader, M
Brunmair, B
Essiaf, S
Ladenstein, R

Grups d'Investigació

Investigación Clínica y Traslacional en Cáncer

Leader

José Gómez Codina

Abstract

Under the ExPO-r-NeT project (European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment), we aimed to identify paediatric oncology tumour boards in Europe to investigate the kind of technologies and logistics that are in place in different countries and to explore current differences between regions. A 20-question survey regarding several features of tumor boards was designed. Data collected included infrastructure, organization, and clinical decision-making information from the centres. The survey was distributed to the National Paediatric Haematology and Oncology Societies that forwarded the survey to the sites. For comparative analysis, respondents were grouped into four geographical regions. The questionnaire was distributed amongst 30 countries. Response was obtained from 23 (77%) that altogether have 212 paediatric oncology treating centres. A total of 121 institutions answered (57%). Ninety-one percent of the centres hold multidisciplinary boards; however, international second consultations are performed in 36% and only 15% participate on virtual tumor boards. Videoconferencing facilities and standard operational procedures (SOPs) are available in 49 and 43% of the centres, respectively. There were statistically significant differences between European regions concerning meeting infrastructure and organization/logistics: specific room, projecting equipment, access to medical records, videoconferencing facilities, and existence of SOPs. Paediatric tumor boards are a common feature in Europe. To reduce inequalities and have equal access to healthcare, a virtual network is needed. Important differences on the functioning and access to technology between regions in Europe have been observed and need to be addressed.

Dades de la publicació

ISSN/ISSNe:: 1699-048X, 1699-3055
Tipus:: Article
Pàgines:: 1046-1052
DOI:: 10.1007/s12094-017-1820-1
PubMed:: 29313207
Factor d'Impacte:: 0,883 SCImago ℠
Quartil:: Q1 SCImago ℠

Documents

No hi ha documents

Mètriques

Filiacions

Juan Ribelles A:: Hospital U I P La Fe, Av. Fernando Abril Martorell No 106, 46026, Valencia, Spain.
Berlanga, P:: Hospital U I P La Fe, Av. Fernando Abril Martorell No 106, 46026, Valencia, Spain

Hosp UIP La Fe, Av Fernando Abril Martorell 106, Valencia 46026, Spain
Schreier, G:: AIT Austrian Institute of Technology GmbH, Vienna, Austria

AIT Austrian Inst Technol GmbH, Vienna, Austria
Nitzlnader, M:: AIT Austrian Institute of Technology GmbH, Vienna, Austria

AIT Austrian Inst Technol GmbH, Vienna, Austria
Brunmair, B:: CCRI, Children's Cancer Research Institute, Vienna, Austria

CCRI, Vienna, Austria
Castel, V:: Hospital U I P La Fe, Av. Fernando Abril Martorell No 106, 46026, Valencia, Spain

Hosp UIP La Fe, Av Fernando Abril Martorell 106, Valencia 46026, Spain
Essiaf, S:: SIOP-Europe Office, Brussels, Belgium

SIOP Europe Off, Brussels, Belgium
Canete, A:: Hospital U I P La Fe, Av. Fernando Abril Martorell No 106, 46026, Valencia, Spain

Hosp UIP La Fe, Av Fernando Abril Martorell 106, Valencia 46026, Spain
Ladenstein, R:: CCRI, Children's Cancer Research Institute, Vienna, Austria

CCRI, Vienna, Austria