Interoperability Architecture for a Paediatric Oncology European Reference Network.

Autores de IIS La Fe

• Adela Cañete Nieto

  Autor

• Antonio Juan Ribelles

  Autor

Participantes ajenos a IIS La Fe

• Nitzlnader, M
• Brunmair, B
• Ladenstein, R
• Schreier, G

Grupos

• Investigación Clínica y Traslacional en Cáncer

  

  Leader

  José Gómez Codina

Abstract

With the Directive 2011/24/EU on patients' rights in cross-border healthcare and the related delegated decisions, the European Commission defined a legal framework on how healthcare shall be organised by European Union (EU) member states (MS) where patients can move beyond the borders of their home country. Among other aspects, Article 12 of the directive is concerned with supporting MS with the development of so called European Reference Networks (ERN), dedicated to the treatment of "patients with a medical condition requiring a particular concentration of expertise in medical domains where expertise is rare". In the "European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment" (ExPO-r-Net) project, the establishment of such an ERN in the domain of Paediatric Oncology is currently piloted. The present paper describes the high level use cases, the main requirements and a corresponding interoperability architecture capable to serve as the necessary IT platform to facilitate cross-border health data exchange.

Keywords

• Integrating the Healthcare Enterprise (IHE); Secondary Use; Standardisation; Cloud Computing; Rare Diseases; Virtual Tumour Boards; Pseudonymisation