Portal de investigación
Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset
Autores de IIS La Fe
Participantes ajenos a IIS La Fe
- Antón J
- Bustabad S
- Camacho M
- de Inocencio J
- Gamir ML
- Graña J
- La Cruz L
- Robledillo JC
- Medrano M
- Merino R
- Modesto C
- Nuñez E
- Rua MJ
- Torrente-Segarra V
- Vargas C
- Carmona L
- Loza E
Grupos
Abstract
To develop recommendations on the transition from pediatric care to adult care in patients with chronic inflammatory rheumatic diseases with childhood onset based. Recommendations were generated following nominal group methodology and Delphi technique. A panel of 16 experts was established. A systematic literature review (on transitional care) and a narrative review were performed and presented to the panel in the first panel meeting to be discussed. A first draft of recommendations was generated and circulated. Focal groups with adolescents, young adults and parents were organized. In a second meeting, the focus group results along with the input from invited psychologist were used to establish definitive recommendations. Then, a Delphi process (two rounds) was carried out. A group of 72 pediatric and adult rheumatologists took part. Recommendations were voted from 1 (total disagreement) to 10 (total agreement). We defined agreement if at least 70 % voted a parts per thousand yen7. The level of evidence and grade or recommendation was assessed using the Oxford center for evidence-based medicine levels of evidence. Transition care was defined as a purposeful, planned process that addresses the medical, psychosocial and educational/vocational needs of adolescents and young adults with chronic inflammatory rheumatic diseases with childhood onset as they move from child-centered to adult-oriented healthcare systems. The consensus covers: transition needs, barriers and facilitators, transitional issues (objectives, participants, content, phases, timing, plans, documentation and responsibilities), physicians' and other health professionals' knowledge and skill requirements, models/programs, and strategies and guideline for implementation. Preliminary recommendations and agreement grade are shown in the Table (first Delphi round). These recommendations are intended to provide health professionals, patients, families and other stakeholders with a consensus on the transition process from pediatric to adult care.
Datos de la publicación
- ISSN/ISSNe:
- 0172-8172, 1437-160X
- Tipo:
- Article
- Páginas:
- 1615-1624
- PubMed:
- 25917856
- Factor de Impacto:
- 0,732 SCImago ℠
- Cuartil:
- Q2 SCImago ℠
RHEUMATOLOGY INTERNATIONAL SPRINGER HEIDELBERG
Citas Recibidas en Web of Science: 25
Documentos
- No hay documentos
Filiaciones
Keywords
- Pediatric rheumatology; Transitional care; Adolescent
Campos de Estudio
Cita
CALVO I,Antón J,Bustabad S,Camacho M,de Inocencio J,Gamir ML,Graña J,La Cruz L,Robledillo JC,Medrano M,Merino R,Modesto C,Nuñez E,Rua MJ,Torrente V,Vargas C,Carmona L,Loza E. Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset. Rheumatol. Int. 2015. 35. (10):p. 1615-1624. IF:1,702. (3).