The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN.

Filiaciones

Raidt, Johanna:

Dept of General Pediatrics, University Hospital Muenster, Muenster, Germany

Maitre, Bernard:

Service de Pneumologie, Hôpital Henri Mondor et Centre Hospitalier Intercommunal de Créteil, Assistance Publique-Hôpitaux de Paris (AP-HP), Créteil, France

Pennekamp, Petra:

Dept of General Pediatrics, University Hospital Muenster, Muenster, Germany

Anagnostopoulou, Pinelopi:

Medical School, University of Cyprus, Nicosia, Cyprus

Armengot, Miguel:

ENT Dept, La Fe Polytechnic and University Hospital, and Surgery Dept, University of Valencia, CIBER of Rare Diseases (CIBERES), Carlos III Health Institute, Ministry of Science and Innovation, Valencia, Spain

Boon, Mieke:

Dept of Pediatrics, University Hospital Leuven, Leuven, Belgium

Borrelli, Melissa:

Pediatric Pulmonology, Dept of Translational Medical Sciences, Federico II University, Azienda Ospedaliera Universitaria Federico II, Naples, Italy

Brinkmann, Folke:

Dept of Paediatric Pulmonology, University Children's Hospital of Ruhr University Bochum at St Josef-Hospital, Bochum, Germany

Carr, Siobhan B.:

PCD Centre and Dept of Paediatric Respiratory Medicine, Royal Brompton Hospital and NHLI, Imperial College, London, UK

Carroll, Mary P.:

Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK

Castillo-Corullon, Silvia:

Paediatric Pulmonology Unit, Hospital Clínico Universitario Valencia, Valencia, Spain

Coste, Andre:

Service d'ORL, Hôpital Henri Mondor et Centre Hospitalier Intercommunal de Créteil, AP-HP, Créteil, France

Cutrera, Renato:

Pediatric Pulmonology and Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Academic Department of Pediatrics (DPUO), Bambino Gesù Children's Hospital, IRCCS, Rome, Italy

Dehlink, Eleonora:

Division of Pediatric Pulmonology, Allergology, and Endocrinology, Dept of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria

Destouches, Damien M. S.:

Assoc Patients Ayant Dyskinesie Ciliaire Primit A, St Etienne, France

Di Cicco, Maria E.:

Pulmonology and Allergology Section, Unit of Pediatrics, Pisa University Hospital, Pisa, Italy

Dixon, Lucy:

PCD Support UK, Buckingham, UK

Emiralioglu, Nagehan:

Dept of Pediatric Pulmonology, Hacettepe University Faculty of Medicine, Ankara, Turkey

Erdem Eralp E:

Division of Pediatric Pulmonology, Pendik Training and Research Hospital, Marmara University, Istanbul, Turkey

Hogg, Claire:

PCD Centre and Dept of Paediatric Respiratory Medicine, Royal Brompton Hospital and NHLI, Imperial College, London, UK

Karadag, Bulent:

Division of Pediatric Pulmonology, Pendik Training and Research Hospital, Marmara University, Istanbul, Turkey

Kobbernagel, Helene E.:

Danish Primary Ciliary Dyskinesia Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark

Lorent, Natalie:

Dept of Pediatrics, University Hospital Leuven, Leuven, Belgium

Mall, Marcus A.:

Dept of Pediatric Respiratory Medicine, Immunology and Critical Care Medicine, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

Berlin Institute of Health (BIH) at the Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany

German Center for Lung Research (DZL) (Associated Partner), Berlin, Germany

Marthin, June K.:

Danish Primary Ciliary Dyskinesia Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark

Martinu, Vendula:

Dept of Paediatrics, Second Faculty of Medicine, Charles University and Motol University Hospital, Prague, Czech Republic

Narayanan, Manjith:

PCD Diagnosis and Research, Dept of Respiratory Sciences, University of Leicester, Leicester, UK

Ozcelik, Ugur:

Dept of Pediatric Pulmonology, Hacettepe University Faculty of Medicine, Ankara, Turkey

Peckham, Daniel:

Primary Ciliary Dyskinesia Management Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK

Pifferi, Massimo:

Pulmonology and Allergology Section, Unit of Pediatrics, Pisa University Hospital, Pisa, Italy

Pohunek, Petr:

Dept of Paediatrics, Second Faculty of Medicine, Charles University and Motol University Hospital, Prague, Czech Republic

Polverino, Eva:

Pneumology Dept, Hospital Universitari Vall d'Hebron, Vall d'Hebron Institut de Recerca (VHIR), Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain

Range, Simon:

Dept of Respiratory Medicine, University Hospitals of Leicester, Leicester, UK

Ringshausen, Felix C.:

Dept of Respiratory Medicine, Hannover Medical School (MHH) and DZL, Hannover, Germany

Robson, Evie:

Primary Ciliary Dyskinesia Management Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK

Roehmel, Jobst:

Dept of Pediatric Respiratory Medicine, Immunology and Critical Care Medicine, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

Rovira-Amigo, Sandra:

Dept of Pediatric Pulmonology, Hospital Universitari Vall d'Hebron, VHIR, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain

Santamaria, Francesca:

Primary Ciliary Dyskinesia Management Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK

Schlegtendal, Anne:

Dept of Paediatric Pulmonology, University Children's Hospital of Ruhr University Bochum at St Josef-Hospital, Bochum, Germany

Szepfalusi, Zsolt:

Division of Pediatric Pulmonology, Allergology, and Endocrinology, Dept of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria

Tempels, Petra:

Kartagener Syndrom and Primäre Ciliäre Dyskinesie e. V., Hannover, Germany

Thouvenin, Guillaume:

Pediatric Pulmonology Dept, Reference Center for Rare Lung Diseases (RespiRare), Armand Trousseau Hospital, AP-HP, Paris, France

Ullmann, Nicola:

Pediatric Pulmonology and Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Academic Department of Pediatrics (DPUO), Bambino Gesù Children's Hospital, IRCCS, Rome, Italy

Walker, Woolf T.:

Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK

Wetzke, Martin:

Dept of Respiratory Medicine, Hannover Medical School (MHH) and DZL, Hannover, Germany

Yiallouros, Panayiotis:

Medical School, University of Cyprus, Nicosia, Cyprus

Omran, Heymut:

Dept of General Pediatrics, University Hospital Muenster, Muenster, Germany

Nielsen, Kim G.:

Danish Primary Ciliary Dyskinesia Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark