Portal de investigación
Factors Influencing Implementation of the Survivorship Passport: The IT Perspective.
Fecha de publicación:
Autores de IIS La Fe
Participantes ajenos a IIS La Fe
- Chronaki C
- Charalambous E
- Cangioli G
- Schreier G
- van den Oever S
- van der Pal H
- Kremer L
- Uyttebroeck A
- Van den Bosch B
- Trinkunas J
- Rascon J
- Ladenstein R
- Düster V
- Bardi E
- Walz D
- Filberd AL
- Grabow D
- Langer T
- Cavalca G
- Haupt R
Grupos
Abstract
Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.
Datos de la publicación
- ISSN/ISSNe:
- 0926-9630, 1879-8365
- Tipo:
- Article
- Páginas:
- 161-168
- DOI:
- 10.3233/SHTI220363
- Factor de Impacto:
- 0,277 SCImago ℠
- Cuartil:
- Q4 SCImago ℠
Studies in health technology and informatics IOS PRESS
Citas Recibidas en Web of Science: 4
Documentos
- No hay documentos
Filiaciones
Keywords
- Cancer Survivors; Childhood Cancer; Electronic Medical Records; HL7 FHIR; International Patient Summary; Paediatric Oncology; Survivorship Passport
Proyectos asociados
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Investigador Principal: MARIAM AGUAS PERIS
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Investigador Principal: BERNARDO VALDIVIESO MARTÍNEZ
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Investigador Principal: ADELA CAÑETE NIETO
PanCareSurPass . COMISION EUROPEA . 2021
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Investigador Principal: BERNARDO VALDIVIESO MARTÍNEZ
101021274 . COMISION EUROPEA . 2021
SEHOP-PENCIL study: Personalised mEdicine for Cancer in children in Spain.
Investigador Principal: ADELA CAÑETE NIETO
PMP21/00073 . INSTITUTO DE SALUD CARLOS III . 2022
Cita
Chronaki C,Charalambous E,Cangioli G,Schreier G,van den Oever S,van der Pal H,Kremer L,Uyttebroeck A,Van den Bosch B,Trinkunas J,Rascon J,Ladenstein R,Düster V,Bardi E,Walz D,Filberd AL,Grabow D,Langer T,Nieto AC,Galán A,Correcher M,Cavalca G,Haupt R. Factors Influencing Implementation of the Survivorship Passport: The IT Perspective. Stud Health Technol Inform. 2022. 293. p. 161-168.