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Patient-Reported Outcome Measures in Colorectal Surgery: Construction of Core Measures Using Open-Source Research Method.

Fecha de publicación: Fecha Ahead of Print:

Autores de IIS La Fe

Participantes ajenos a IIS La Fe

  • El-Hussuna A
  • Rubio-Perez I
  • Pellino G
  • Negoi I
  • Gallo G
  • Shalaby M
  • Celentano V
  • Green R
  • Minaya-Bravo A
  • Emile S
  • Smart NJ
  • Maeda Y
  • Ivatury SJ
  • Mackenzie G
  • Yalçinkaya A
  • Mellenthin C
  • N Dudi-Venkata N
  • Davies J
  • McNair A
  • Pata F
  • Gymoese Berthelsen K
  • Rivadeneira D
  • Spinelli A
  • Myrelid P
  • Mayol J
  • Wexner S
  • OpenSourceResearch collaboration

Abstract

Purpose . The primary aim of the study was to review the existing literature about patient-reported outcome measures (PROMs) in colorectal cancer and IBD. The secondary aim was to present a road map to develop a core outcome set via opinion gathering using social media. Method . This study is the first step of a three-step project aimed at constructing simple, applicable PROMs in colorectal surgery. This article was written in a collaborative manner with authors invited both through Twitter via the #OpenSourceResearch hashtag. The 5 most used PROMs were presented and discussed as slides/images on Twitter. Inputs from a wide spectrum of participants including researchers, surgeons, physicians, nurses, patients, and patients' organizations were collected and analyzed. The final draft was emailed to all contributors and 6 patients' representatives for proofreading and approval. Results . Five PROM sets were identified and discussed: EORTC QLQ-CR29, IBDQ short health questionnaire, EORTC QLQ-C30, ED-Q5-5L, and Short Form-36. There were 315 tweets posted by 50 tweeters with 1458 retweets. Awareness about PROMs was generally limited. The general psycho-physical well-being score (GPP) was suggested and discussed, and then a survey was conducted in which more than 2/3 of voters agreed that GPP covers the most important aspects in PROMs. Conclusion . Despite the limitations of this exploratory study, it offered a new method to conduct clinical research with opportunity to engage patients. The general psycho-physical well-being score suggested as simple, applicable PROMs to be eventually combined procedure-specific, disease-specific, or symptom-specific PROMs if needed.

Datos de la publicación

ISSN/ISSNe:
1553-3506, 1553-3514

SURGICAL INNOVATION  SAGE Publications

Tipo:
Article
Páginas:
560-566
PubMed:
33710930
Factor de Impacto:
0,425 SCImago ℠
Cuartil:
Q2 SCImago ℠

Citas Recibidas en Web of Science: 9

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Keywords

  • collaborative, colorectal, inflammatory bowel disease, patient, patient-reported outcome measures, surgery

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