Portal de investigación
Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents.
Fecha de publicación:
Autores de IIS La Fe
Participantes ajenos a IIS La Fe
- Boon M
- Claes I
- Havermans T
- Asseiceira I
- Bulfamante A
- Garriga M
- Woodcock S
- Walet S
- Barreto C
- Colombo C
- Van der Wiel E
- Hulst J
- Nobili R
- Pereira L
- Ruperto M
- Vicente S
- De Boeck K
- MyCyFAPP consortium
Grupos
Abstract
Most patients with cystic fibrosis (CF) suffer from pancreatic insufficiency, leading to fat malabsorption, malnutrition and abdominal discomfort. Until recently, no specific tool was available for assessing gastro-intestinal related quality of life (GI QOL) in patients with CF. As the Horizon2020 project MyCyFAPP aims to improve GI QOL by using a newly designed mobile application, a sensitive and reliable outcome measure was needed. We aimed to study the applicability of the existing child-specific Pediatric Quality of Life Inventory, Gastrointestinal Symptoms Scales and Module (PedsQL GI) in children with CF.
Datos de la publicación
- ISSN/ISSNe:
- 1932-6203, 1932-6203
- Tipo:
- Article
- Páginas:
- -
- PubMed:
- 31860639
- Factor de Impacto:
- 1,023 SCImago ℠
- Cuartil:
- Q1 SCImago ℠
PLoS One PUBLIC LIBRARY SCIENCE
Citas Recibidas en Web of Science: 27
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