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Perception of stigma in patients with primary progressive multiple sclerosis.

Fecha de publicación:

Autores de IIS La Fe

Participantes ajenos a IIS La Fe

  • Prefasi D
  • García-Merino A
  • Ara JR
  • Izquierdo G
  • Meca-Lallana V
  • Gascón F
  • Martínez-Ginés ML
  • Ramió-Torrentà L
  • Costa-Frossard L
  • Fernández Ó
  • Moreno-García S
  • Maurino J

Grupos

Abstract

Stigma associated with neurological disorders may contribute to a poor health-related quality of life. However, limited information is available in primary progressive multiple sclerosis. We investigated the presence and impact of stigma in patients with primary progressive multiple sclerosis. A non-interventional, cross-sectional study was conducted. A total of 55 primary progressive multiple sclerosis patients were studied (mean age 55.89.5 years, 56.4% male). The median Expanded Disability Status Scale score was 5.5 (4.0-6.5). Stigma prevalence was 78.2% ( n =43). Twenty-four patients (43.6%) were classified as depressed. Scores on the eight-item Stigma Scale for Chronic Illness correlated with physical (rho=0.464, p 0.001) and psychological (rho=0.358, p =0.007) 29-item Multiple Sclerosis Impact Scale subscores. Stigma predicted concurrent depression (odds ratio=1.13; p =0.046). Stigma was highly prevalent with a detrimental effect on quality of life and mood in primary progressive multiple sclerosis.

Datos de la publicación

ISSN/ISSNe:
2055-2173, 2055-2173

Multiple Sclerosis Journal-Experimental Translational and Clinical  SAGE PUBLICATIONS INC

Tipo:
Article
Páginas:
-
PubMed:
31205741

Citas Recibidas en Web of Science: 7

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Keywords

  • Primary progressive multiple sclerosis, depression, health-related quality of life, patient-reported outcomes, stigma

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