Portal de investigación
ESTUDIO DE LA INCIDENCIA DE HEMARTROSIS EN EL PACIENTE HEMOFÍLICO ADULTO GRAVE CON PROFILAXIS SECUNDARIA.
Datos básicos
- Código:
- PROFILHEMA
- Protocolo:
- PROFILHEMA
- EUDRACT:
- NCT:
- Centro:
- Dotación:
- Año de incio:
- Año de finalización:
Documentos
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Participantes
Financiadores - Promotores
Resultados del Ensayo Clínico
A MODIFICATION OF CALIBRATED AUTOMATED THROMBIN GENERATION ASSAY TO EXPLORE NEW COFACTORS OF ACTIVATED PROTEIN C IN PLASMA
Martos, L.; (...); Navarro Rosales, S.
Meeting Abstract. 10.1016/S0049-3848(14)50233-2. 2014
A simplified assay for quantification of circulating activated protein C levels
Medina, P.; (...); Espana, F.
Article. 2013
Adherence to prophylaxis and quality of life in children and adolescents with severe haemophilia A
García-Dasí M; (...); García-Talavera JA
Article. 10.1111/hae.12618. 2015
Adherence to prophylaxis in adult patients with severe haemophilia A
Bonanad, S; (...); Alvarez, M
Meeting Abstract. 2019
Adherence to prophylaxis in adult patients with severe haemophilia A
Bonanad, S; (...); Alvarez, MP
Article. 10.1111/hae.14039. 2020
Adverse effects after a single moderate-volume strong-intensity strength training session in patients with severe hemophilia: feasibility and safety study
Querol-Fuentes, F; (...); Bonanad, S
Meeting Abstract. 2018
Assessment of haemophilic arthropathy through balance analysis: a promising tool
Garcia-Masso, X; (...); Gonzalez, LM
Article. 10.1080/10255842.2018.1561877. 2019
Assessment of Kinect V2 for elbow range of motion estimation in people with haemophilia using an angle correction model
Mateo, F; (...); Perez-Alenda, S
Article. 10.1111/hae.13744. 2019
Assessment of the thrombin generation assay in haemophilia: comparative study between fresh and frozen platelet-rich plasma.
Vila V; (...); España F
Article. 10.1111/hae.12044. 2013
Association of haplotypes (H) 1 and 3 of the endothelial protein c receptor gene (PROCR) with venous thromboembolism
Bonet, Elena; (...); Espana, Francisco
Article. 10.1016/j.thromres.2012.08.027. 2012
Association of haplotypes (H) 1 and 3 of the endothelial protein C receptor gene (PROCR) with venous thromboembolism
Navarro, S.; (...); Medina, P.
Article. 2013
Balance evaluation in haemophilic preadolescent patients using Nintendo Wii Balance Board (R)
Perez-Alenda, S; (...); Querol, F
Article. 10.1111/hae.13128. 2017
Bayesian pharmacokinetic individualization of prophylaxis with recombinant factor VIII in severe or moderate hemophilia A
Megias-Vericat, JE; (...); Bonanad, S
Meeting Abstract. 2018
Bayesian pharmacokinetic-guided prophylaxis with recombinant factor VIII in severe or moderate haemophilia A
Megias-Vericat, JE; (...); Poveda, JL
Article. 10.1016/j.thromres.2018.12.027. 2019
Benefits of Ehl Factor VIII Replacement Therapy in Hemophilia: Observations on Coverage, Physical Activity and Phisiotherapy
Querol, Felipe; (...); Bonanad Boix, Santiago
Meeting Abstract. 10.1182/blood-2019-125651. 2019
Benefits of physical activity self-monitoring in patients with haemophilia: a prospective study with one-year follow-up.
Pérez-Alenda S; (...); Núñez-Cortés R
Article. 10.1111/hae.14988. 2024
CLINICAL VALIDATION OF THE SPECIFIC POPULATION MODEL OF FACTOR VIII/FVW PLASMA USING WAPPS-HEMO
Megias Vericat, J. E.; (...); Poveda, A. J. L.
Meeting Abstract. 2019
Comorbidities in Patients With Hemophilia: Changes in Joints and its Correlation with Bone Mineral Density
Perez-Alenda, S.; (...); Querol, F.
Meeting Abstract. 2015
Comparison of a new chemiluminescent immunoassay for von Willebrand factor activity with the ristocetin cofactor-induced platelet agglutination method
Cabrera, N.; (...); Aznar, J. A.
Article. 2013
Comparison of a new chemiluminescent immunoassay for von Willebrand factor activity with the ristocetin cofactor-induced platelet agglutination method.
Cabrera N; (...); Aznar JA
Article. 10.1111/hae.12203. 2013
Comparison of pharmacokinetic estimates using generic and specific population pharmacokinetic models of plasma-derived factor VIII/VWF using WAPPS-Hemo
Megias-Vericat, JE; (...); Poveda, JL
Meeting Abstract. 2020
Cross-sectional comparative study of pharmacokinetics and efficacy between sucrose-formulated recombinant factor VIII (Kogenate (R)) and BAY 81-8973 (KovaltryA (R)) in patients with severe or moderate haemophilia A in prophylaxis
Megias-Vericat, JE; (...); Poveda, JL
Letter. 10.1111/hae.13733. 2019
Development and testing of a mobile app for systematic collection of patient-reported outcomes (PROs) in patients with hemophilia.
Megias-Vericat, J E; (...); Poveda Andres, J L
Letter. 10.1016/j.thromres.2024.109122. 2024
DIAGNOSIS AND MANAGEMENT OF HEMARTHROSIS AND HAEMOPHILIC ARTHROPATHY USING UNIFIED CLINICAL AND ULTRASOUND CRITERIA: PRELIMINARY RESULTS
Chimeno-Hernandez, A; (...); Querol, F
Meeting Abstract. 2021
Effect of monitoring daily physical activity on quality of life in adult patients with haemophilic arthropathy
Perez-Alenda, Sofia; (...); Carrasco, Juan J.
Meeting Abstract. 2018
Effect of radiosynoviorthesis on the progression of arthropathy and haemarthrosis reduction in haemophilic patients
Querol-Giner, M.; (...); Querol, F.
Article. 10.1111/hae.13326. 2017
Effectiveness of progressive moderate-vigorous intensity elastic resistance training on quality of life and perceived functional abilities in people with haemophilia: secondary analysis of a randomized controlled trial.
Cruz-Montecinos C; (...); Calatayud J
Article. 10.1111/ejh.13900. 2022
Effects of a non-pharmacological approach for chronic pain management in patients with haemophilia: efficacy of cognitive-behavioural therapy associated with physiotherapy.
García-Dasí M; (...); Bonanad S
Article. 10.1111/hae.14284. 2021
EFFECTS OF MULTIMODAL EXERCISES PROGRAM ON BALANCE, FUNCTIONALITY, RISK OF FALLS AND STRENGTH IN PEOPLE WITH HAEMOPHILIA
Chimeno-Hernandez, A.; (...); Querol, F.
Article. 2022
Effects of performing dual tasks on postural sway and postural control complexity in people with haemophilic arthropathy
Cruz-Montecinos, C; (...); Perez-Alenda, S
Article. 10.1111/hae.13955. 2020
Electromyographic and Safety Comparisons of Common Lower Limb Rehabilitation Exercises for People With Hemophilia.
Calatayud J; (...); Casaña J
Article. 10.1093/ptj/pzz146. 2020
Emerging viral infections--a potential threat for blood supply in the 21st century.
de Mendoza C; (...); Soriano V
Article. 2012
Estimation of tensile properties of the Achilles tendon in haemophilic arthropathy of the ankle: case study
Cruz-Montecinos, C; (...); Querol-Fuentes, F
Letter. 10.1111/hae.12619. 2015
Experience of basic course of physical therapy in haemophilia in South America
Cruz-Montecinos, C; (...); Perez-Alenda, S
Meeting Abstract. 2018
Feasibility, safety and muscle activity during flywheel vs traditional strength training in adult patients with severe haemophilia.
Calatayud J; (...); Casaña J
Article. 10.1111/hae.14170. 2020
Functional and Gait Analysis in Spanish Children with haemophilia
Perez-Alenda, S; (...); Querol-Fuentes, F
Meeting Abstract. 2017
Gait analysis by means of accelerometry in patients with haemophilic arthropathy
Carrasco, Juan J.; (...); Querol, Felipe
Meeting Abstract. 2016
Haemophilia Experiences, Results and Opportunities (HERO) study: treatment-related characteristics of the population
Nugent, D; (...); Iorio, A
Article. 10.1111/hae.12545. 2015
Haemophilic arthropathy: basic protocols for clinical examination and imaging.
Querol, F.; (...); Perez-Alenda, S.
Article. 10.1097/MBC.0000000000001215. 2023
Haemotrack: Musculoskeletal management in haemophilia with physiotherapist-driven digital solutions
Perez-Alenda, Sofia; (...); Aguilar-Rodriguez, Marta
Meeting Abstract. 2024
Haplotypes of the endothelial protein C receptor gene and circulating protein C levels
Martos, L.; (...); Medina, P.
Article. 2013
Haplotypes of the endothelial protein C receptor gene and circulating protein C levels
Martos, Laura; (...); Espana, Francisco
Article. 10.1016/j.thromres.2012.08.026. 2012
Head-to-head comparison of the pharmacokinetic profiles of a high-purity factor IX concentrate (AlphaNine®) and a recombinant factor IX (BeneFIX®) in patients with severe haemophilia B.
Lissitchkov T; (...); Páez A
Article. 10.1111/hae.12148. 2013
HemoKinect: A Microsoft Kinect V2 Based Exergaming Software to Supervise Physical Exercise of Patients with Hemophilia
Mateo, F; (...); Perez-Alenda, S
Article. 10.3390/s18082439. 2018
Home-delivered ultrasound monitoring for home treatment of haemarthrosis in haemophilia A
Letter. 10.1111/hae.12622. 2015
Identification of mutations in the protein C gene in a panel of 65 Spanish families with protein C deficiency
Martos, Laura; (...); Espana, Francisco
Article. 10.1016/j.thromres.2012.08.029. 2012
Immune Tolerance Induction in A Patient with Severe Haemophilia A and Factor VIII Inhibitors
Freiria Alberte, C.; (...); Haya Guaita, S.
Meeting Abstract. 2017
IMPACT OF INITIATION OF PROPHYLAXIS, SYNOVITIS AND FUNCTIONALITY ON JOINT HEALTH IN PATIENTS WITH HEMOPHILIA
Chimeno, A.; (...); Bonanad Boix, S.
Meeting Abstract. 2023
Individualization of prophylaxis with recombinant factor VIII in severe or moderate hemophilia A
Vericat, JEM; (...); Bonanad, S
Meeting Abstract. 2018
Individualized Prophylactic Treatment with Recombinant Factor VIII in Severe or Moderate Haemophilia a Patients. Association Between Pharmacokinetic Parameters and Clinical Variables
Megias-Vericat, Juan Eduardo; (...); Bonanad, Santiago
Meeting Abstract. 10.1182/blood.V128.22.3802.3802. 2016
Inhibitor development after switching of FVIII concentrate in multitransfused patients with severe haemophilia A
Article. 10.1111/hae.12439. 2014
Interaction of dual task in haemophiliac and non-haemophiliac subjects in postural control during quiet stance
Cruz-Montecinos, C; (...); Perez-Alenda, S
Meeting Abstract. 2018
Is on-demand treatment effective in patients with severe haemophilia?
Aznar JA; (...); Moret A
Article. 10.1111/j.1365-2516.2012.02806.x. 2012
Joint damage and motor learning during unipedal stance in haemophilia arthropathy: report of two cases
Cruz-Montecinos, C; (...); Querol, F
Letter. 10.1111/hae.13060. 2016
Joint status in Spanish haemophilia B patients assessed using the Haemophilia Early Arthropathy Detection with Ultrasound (HEAD-US) score.
Jiménez-Yuste V; (...); Kim HK
Article. 10.1111/hae.13628. 2019
Kinetics of the interaction between anti-FVIII antibodies and FVIII from therapeutic concentrates, with and without von Willebrand factor, assessed by surface plasmon resonance.
Grancha S; (...); Aznar JA
Article. 10.1111/j.1365-2516.2012.02858.x. 2012
Mental, emotional and social dimensions of quality of life and their relationship with physical and functional status in adults with haemophilia.
Rodríguez MA; (...); Chimeno-Hernández A
Article. 10.1016/j.thromres.2024.109181. 2024
Moderate and severe haemophilia in Spain: An epidemiological update
Aznar, JA; (...); Lopez, MF
Letter. 10.1111/hae.13462. 2018
MONITORING OF THE JOINT HEALTH OF PATIENTS WITH HEMOPHILIA IN SPAIN. INITIAL ANALYSIS OF THE JOINT US PROJECT
Alvarez-Roman, MT; (...); Querol, F
Meeting Abstract. 2021
Muscle strength in load-bearing joints in haemophilic patients: comparative values with the general population
Bonanad-Boix, S.; (...); Querol, F.
Meeting Abstract. 2015
Muscle Strength in Spanish Children with Mild and Severe Haemophilia A
Bonanad, S.; (...); Querol-Fuentes, F.
Meeting Abstract. 2016
Musculoskeletal ultrasound in hemophilia: Results and recommendations from a global survey and consensus meeting.
Bakeer, Nihal; (...); Blanchette, Victor S
Article. 10.1002/rth2.12531. 2021
Physical Activity in adult patient with haemophilic arthropathy monitored by Fitbit Charge HR
Perez-Alenda, Sofia; (...); Bonanad, Santiago
Meeting Abstract. 2016
Physical Activity In Haemophilia: Hemorrhagic Risk And Factor Levels (myPKFiT)
Querol-Fuentes, F; (...); Bonanad, S
Meeting Abstract. 2017
Physical Activity Monitoring and Acceptance of a Commercial Activity Tracker in Adult Patients with Haemophilia.
Carrasco JJ; (...); Querol F
Article. 10.3390/ijerph16203851. 2019
Positive Impact of Prophylactic Treatment in the Social Integration of Children With Hemophilia
Torres-Ortuno, A; (...); Querol-Fuentes, F
Meeting Abstract. 2017
Predictive factors of immune tolerance treatment response in severe haemophilia A patients with inhibitors: A real-world report from a single centre, mixed retrospective-prospective long-term study
Haya, S; (...); Casana, P
Letter. 10.1111/hae.13660. 2019
Predictive models of treatment benefit in patients with autoimmune hepatitis and decompensated cirrhosis at diagnosis
Arvaniti, Pinelopi; (...); Carlota Londono, Maria
Meeting Abstract. 2023
PROPOSAL FOR A MULTIMODAL BALANCE EXERCISE PROGRAM FOR PEOPLE WITH HAEMOPHILIA
Chimeno-Hernandez, A; (...); Bonanad, S
Meeting Abstract. 2020
Quantification of physical activity in adult patients with haemophilic arthropathy in prophylaxis treatment using a fitness tracker
Perez-Alenda, S; (...); Querol, F
Letter. 10.1111/hae.13388. 2018
Radiosynoviorthesis in the Treatment of Recurrent Hemarthrosis in Patients with Haemophilia: Experience in a Single Center
Querol-Fuentes, F; (...); Bonanad, S
Meeting Abstract. 2017
Remote monitorization of physical exercises for patients with hemophilia using kinect V2
Perez-Alenda, S; (...); Querol-Fuentes, F
Meeting Abstract. 2018
Risk Factors for One-Year Mortality in Hospitalized Adults with Severe COVID-19 Comment
Nunez-Cortes, Rodrigo; (...); Calatayud, Joaquin
Editorial Material. 10.14336/AD.2022.0424. 2022
Safety and Effectiveness of Progressive Moderate-to-Vigorous Intensity Elastic Resistance Training on Physical Function and Pain in People With Hemophilia.
Calatayud J; (...); Casaña J
Article. 10.1093/ptj/pzaa106. 2020
Secondary prophylaxis vs. on-demand treatment to improve quality of life in severe adult haemophilia A patients: a prospective study in a single centre
Article. 10.1111/vox.12066. 2014
Sensory strategies of postural sway during quiet stance in patients with haemophilic arthropathy
Cruz-Montecinos C; (...); Pérez-Alenda S
Article. 10.1111/hae.13297. 2017
Sequelae of repeated lesions in persons with hemophilia.
Article. 10.1097/MBC.0000000000000820. 2019
Study of The Correlation Between Osteoporosis and Arthropathy in Haemophilia Patients Using Self-Organizing Maps
Querol-Fuentes, F.; (...); Bonanad, S.
Meeting Abstract. 2015
Synoviorthesis in the Treatment of Recurrent Hemarthrosis in Haemophilia Patients with Inhibitors
Querol-Giner, M.; (...); Querol-Fuentes, F.
Meeting Abstract. 2016
The impact of progressive resistance training on physical function and quality of life in patients with haemophilia
Carrasco, JJ; (...); Querol-Fuentes, F
Meeting Abstract. 2019
THROMBIN GENERATION TEST IN PATIENTS UNDER NEW ORAL ANTICOAGULANTS (DABIGATRAN AND RIVAROXABAN)
Cabrera, N.; (...); Bonanad, S.
Meeting Abstract. 10.1016/S0049-3848(14)50148-X. 2014
Tolerability of knee and ankle exercises with machines and elastic resistance in patients with severe hemophilia
Perez-Alenda, S; (...); Bonanad, S
Meeting Abstract. 2018
Ultrasound evaluation of joint damage and disease activity in adult patients with severe haemophilia A using the HEAD-US system.
Jiménez-Yuste V; (...); Kim HK
Article. 10.1111/hae.14280. 2021
Ultrasound Protocol for the Diagnosis and Monitoring of the Acute Hemarthrosis
Querol-Fuentes, F.; (...); Bonanad, S.
Meeting Abstract. 2016
Upper-Body Exercises With External Resistance Are Well Tolerated and Enhance Muscle Activity in People With Hemophilia
Calatayud, J; (...); Casana, J
Article. 10.1093/ptj/pzy136. 2019
Usability and usefulness of a wearable activity tracker in patients with hemophilia
Querol-Fuentes, F; (...); Bonanad, S
Meeting Abstract. 2018
Use of ultrasound for assessment of musculoskeletal disease in persons with haemophilia: Results of an International Prophylaxis Study Group global survey.
Ignas DM; (...); Babyn P
Article. 10.1111/hae.14006. 2020
Use of ultrasound for assessment of musculoskeletal disease in persons with hemophilia: Results of an International Prophylaxis Study Group (IPSG) survey
Doria, A; (...); Querol, F
Meeting Abstract. 2018
Validity of a depth camera for elbow range of motion measurement in haemophilic patients: The first step for a telemedicine approach
Mateo, F; (...); Querol-Fuentes, F
Meeting Abstract. 2018